Tuesday, August 20, 2013

Day 7

Day 7.  How has it only been a week?  

This morning we had our first visit at the U of M.  As we sat, waiting for the doctor, the words to a song that I sang as a kid kept running through my head. Everywhere I go The Lord is with me, if I call upon him he shall hear me, never shall I fear, for The Lord is near, everywhere I go.   I remember singing this the night before I had some surgery...either my tonsils or my elbow, I don't remember which.   It comforted me as a kid to sing and keep those words in mind.   It was interesting that they came back to me as I was sitting in the doctor's office, waiting to hear about the results of my PET scan.  Once again, they were a comfort. 

We had good news today.  Delivered in a wonky way -- but good nonetheless.  Tuttle asked if I had ever had a brain MRI - and if not, I should get one.  When I asked why -- and what was in my PET scan that drove that... "oh - the PET is normal, but you should get a brain scan to confirm"...  Well - that was big news -- give me a minute to get my breath back.  Good Lord.   

We are moving forward with the surgery on my toe for this Thursday.  I keep saying that I'm at peace with losing my toe...but it is going to make me sad.  It sucks.  I said it.  It really sucks.  But -- if it gives me a future with my sweet family -- then goodbye toe.   Tomorrow is our first meeting with oncology.  Hopefully, we get a few more details on the specifics of this melanoma and what we might be facing in the long term.  

M is getting sick.  103 temp tonight.   My baby feels miserable - and I can't hold her because I can't get sick.  I'm so thankful that my mom is here.   If I can't hold her, I'm glad she can snuggle with grandma.   We had her tested for strep - and it was negative....but now we're not so sure.  

Overall though, despite potential strep and still with some big hurdles this week...tonight there is happiness.   We got a win on our side.  

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